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Research Projects

National Eczema Society contributes to research projects that we believe have the potential to make a significant difference to the lives of people with eczema. Here are examples of research projects to which we have contributed, or which we have promoted on our social media channels/website/Exchange magazine:
  • The UK-Irish Atopic Eczema Systemic Therapy Register (A-STAR). We attend twice-yearly A-STAR Study Steering Committee meetings as a patient representative.The purpose of A-STAR is to collect information from adult and paediatric patients with eczema starting certain treatments, such as ciclosporin, methotrexate, azathioprine, or novel treatments, such as biologics and so-called ‘small molecules’. The study aims to establish how well these medicines work with regard to improvement in disease severity, quality of life and also safety, especially when these medicines are used for longer periods of time. 
  • Harmonising Outcome Measures for Eczema (HOME). The purpose of the HOME initiative is to develop a consensus-based core outcome set for clinical trials and clinical practice. The core outcome set is the minimum that should be measured in all clinical trials. We promoted a survey on our social media channels that was conducted to inform the HOME initiative.
  • Psoriasis and Psoriatic Arthritis Alliance (PAPAA)-funded research study, organised by The University of Sheffield and Sheffield Children’s NHS Foundation Trust. This study aimed to find out more about psychological wellbeing in children with eczema/psoriasis and their parents. We promoted a free 9-week mindfulness course on our social media channels, which was part of this study.
  • BIOMAP Taking advantage of recent technical developments in translational medicine, the project will drive drug discovery and improve direct disease management.