Could you talk to researchers about your experience of living with eczema?
The National Eczema Society is approached regularly by university researchers who want to learn from people affected by eczema when planning their research studies. People with eczema can play a vital role in helping researchers to understand what it is like to live with the condition, and ensure research projects are designed with real patient insights.
This activity is sometimes referred to as Patient and Public Involvement (PPI) in research. Would you be interested in volunteering some time to help shape future research into eczema? National Eczema Society believes it is so important for researchers to listen to people with eczema, and we have a panel of volunteers who are willing to share their experience of eczema with research teams. For example you might join a research project steering group and attend occasional meetings (typically every six months), take part in patient feedback sessions, or contribute your ideas to policy consultations or new treatment assessments. Travel expenses to attend meetings would be paid.
Anybody aged 18 upwards who is affected by eczema and has an interest in research can become a patient representative volunteer. You can contribute as much or as little time as you are able to. You don’t need to have a scientific or research background, although you will feel the greatest benefit from the experience if you are willing to familiarise yourself with medical and research language. Above all, you’ll need to have a genuine interest in research to help us understand more about eczema, how to treat it and ultimately how to prevent it developing in the first place.
If that sounds like you, please email firstname.lastname@example.org for more information.