National Eczema Society is a membership organisation and our members are invited to attend and participate in the Society’s Annual General Meeting (AGM), usually held in September. You get to hear about the work of the charity over the past year, including the Treasurer’s report on the Society’s annual accounts. Members are also asked to vote on any resolutions proposed by the Trustees. Member can also send their proxy votes using the form listed on the reverse side of the AGM Notice.
Our Annual General Meeting this year is on Wednesday 24 September 2025 at 2.00-2.30pm and is being held by Zoom video conference. Members are asked to email us at info@eczema.org to request the AGM joining instructions. Thank you!
The National Eczema Society team was in Glasgow early July for the British Association of Dermatologists’ 105th Annual Meeting. As the UK charity dedicated to eczema, we’re here to make sure the condition is taken seriously, listened to, and properly understood by those shaping dermatology care.
From our patient support information stand, we were able to share updates with dermatologists on the research we’re funding, our campaign for clearer steroid labelling, and the trusted information we provide to help patients and healthcare professionals alike.
We’re proud to be the voice for eczema patients, because eczema deserves more attention, more understanding and much better support. Attending events like this gives us an opportunity to network and learning from other skin charities too.
We also get to hear about the latest research and developments. The conference programme covers all skin conditions and it was good see to see many sessions on eczema. Topics varied from henna tattoos and contact allergy, to wearable devices for self-management, to prescribing of emollients for older people with eczema. It was great to see so many presentations on the newer systemic treatments for more severe eczema, and hear reassuring updates from the A-STAR research study that is tracking the safety and effectiveness of these newer treatments.
It was really exciting to hear how researchers are now exploring how treatments can change how eczema progresses (so called ‘’disease modification’), to prevent future symptoms. Dr Paula Beattie gave an excellent talk on the importance of fully considering people’s other health issues when treating moderate to severe eczema. The use of Artificial Intelligence (AI) in dermatology care was a hot topic this year, and good to see talks on hyperpigmentation in skin of colour, the mental health impacts of skin conditions, and topics like photosensitive atopic dermatitis that don’t usually get a lot of attention.
It was also very encouraging to have two sessions on topical steroid withdrawal (TSW), focusing especially on communication and TSW. These were well attended by the dermatology community and a sign awareness is growing.
Huge thanks to Dr Alia Ahmed and Dr Maria-Angeliki Gkini for their clear, compassionate advice on how clinicians can better support patients experiencing TSW. Our key takeaways were:
– Patients often feel dismissed or distressed in clinical settings
– The mental health impact is not well recognised
– Validating patients’ experiences matters, even when views differ
– More research is urgently needed!
National Eczema Society is proud to fund in this space and look forward to guidance on TSW from the British Association of Dermatologists soon.
On 7th May 1975, 50 years ago today, the Society’s founder Christine Orton wrote an article in The Guardian newspaper calling for change. Christine highlighted the lack of support and information available to help her manage her son’s eczema. The response from others affected by eczema was overwhelming. Christine went on to organise a public meeting and, soon after, the National Eczema Society charity was formed.
Our charity has achieved so much over the past five decades, thanks to our wonderful members, volunteers, donors, campaigners and the many healthcare professionals who support our work. We still have much more to accomplish though to make life better for people with eczema and their families. There is still no cure for eczema – and until there is, we will work tirelessly to support our eczema community, campaign for better care, and progress research to find the answers we desperately need.
National Eczema Society wrote a letter to The Guardian today, which we’ve reproduced here, highlighting our renewed commitment to bring about positive change for our eczema community.
7 May 2025
Fiftieth Anniversary of National Eczema Society
A Guardian letter published exactly 50 years ago proved transformative. Journalist Christine Orton, writing about her child’s severe eczema, prompted a massive response from other affected families leading to the founding of the National Eczema Society (NES) charity. Today, while we recognise significant advances in eczema care, many challenges remain, not least public attitudes and misunderstanding of eczema. In a world where perfect skin is expected, eczema is at best an embarrassment and at worst a source of disgust, compounding the misery and discomfort felt by many sufferers. Eczema, affecting 8 million children and adults in the UK, is sidelined by educators, regulators and funding bodies alike. A much-needed eczema management guideline was shelved by the National Institute for Health and Care Excellence (NICE) leaving sufferers unable to access newer treatments. Research is dominated by financial interests. In response, NES has shifted its focus to become a powerful advocacy body for the eczema community. We celebrate our 50th anniversary with the success of the charity’s campaign for strength labelling of topical corticosteroids and the launch of our own research awards, one of which will be named after Christine Orton.
The Guardian helped galvanise eczema sufferers 50 years ago and we will continue to champion the eczema community with a louder voice over the next half century.
Professor Celia Moss OBE, Stephen Pugh and Andrew Proctor
National Eczema Society
After 10 years based in Camden, in north London, National Eczema Society has moved south of the river Thames to offices near London Bridge. Our new address is: 82 Tanner Street, London SE1 3GN.
Our new office is in a shared workspace called Canopi, and we’re now working alongside many other charities and social sector organisations who are also based here. This is more efficient and flexible office space for the Society and offers new opportunities to network and collaborate with other charities.
Buying National Eczema Society Christmas cards is a great way to raise awareness of eczema, as well as much-needed funds for the charity.
We have a wide selection of designs and they’re easy to buy on ebay.
Just search for ‘National Eczema Society’ and you’ll find them! Thank you for your support.
We are very grateful to the Society’s wonderful West Surrey and NE Hampshire Volunteer Group, which organises these card sales.
We were SO disappointed for all our supporters expecting to take part in the Great South Run earlier this month. The event organiser cancelled the run at short notice, because of heavy rain and strong winds forecast for Portsmouth that day. Safety comes first of course!
We are hugely grateful to everyone who takes on a physical challenge for National Eczema Society, raising much-needed funds and awareness of eczema. You need bags of commitment to train for a race like this, and that’s usually much harder if you have eczema.
Big thanks to our supporters including Jemma (pictured), Sal and Ben who decided to run 10 miles anyway – the equivalent distance of the Great South Run – near where they live. You’re amazing!
Do get in touch if you want to take on a running challenge and support National Eczema Society. More information here and you can email us at fundraising@eczema.org