We’re excited to bring you our latest webinar series, ‘Exploring Eczema’ with National Eczema Society’s Dermatology Nurse Advisor, Julie Van Onselen. We are exploring seven differing eczema topics over the next few months, including to using emollients, managing eczema outside of home and looking after a child with eczema. Each session will be hosted twice, one midday and one early evening slot, so hopefully everyone who’s interest can attend.
The webinars will be livestreamed via Facebook and the recording will remain available to watch afterwards. To be able to participate in the webinar, however, you would need to register in advance via the links below and join on Teams on the day.
More information and how to take part here.
National Eczema Society webinar series
- Managing baby and toddler eczema
- Eczema in school aged children
- Emollients
- Managing eczema flare ups and skin infections
- Contact dermatitis
- Eczema triggers
National Eczema Society is a membership organisation and our members are encouraged to attend and participate in the Society’s Annual General Meeting (AGM), usually held in September. You get to hear about the work of the charity over the past year, including the Treasurer’s reports on the Society’s annual accounts. Members are also asked to vote on any resolutions proposed by the Trustees.
Thank you to members who attended our AGM on Wednesday 25 September 2024, held by Zoom video conference.
If you’re not already a member, we’d love you to join National Eczema Society! Our charity has been working hard to make life better for people with eczema and their families for nearly 50 years. Membership costs just £25.00 per year if you live in the UK, and £50.00 for non-UK residents.
As a member, you’ll receive paper copies of our magazine, Exchange, which is packed with features, tips, research news and inspiration to equip and support you on all stages of your eczema journey. You can find out about other benefits of membership and how to join here.
You can read the latest edition of Exchange magazine here!
National Eczema Society has taken the difficult decision to close its eczema helpline and stop providing personalised eczema advice. This change has been implemented today, 18 March 2024. We understand this will be disappointing for supporters and others who have used the Society’s helpline in the past and appreciate the advice provided. We have been pleased and proud to have supported people through the helpline for many years.
The Society produces a wide range of information about eczema and how to treat the condition. This is available through our website, factsheets, booklets, membership magazine, webinars and videos. We’re planning to grow these resources in the future, which are used and valued by millions of people in the eczema community.
We are a relatively small charity, serving a large community of people affected by eczema – over eight million adults and children in the UK and their families. With limited funding, we have to make difficult choices over how to allocate our limited resources to achieve the biggest impact for people with eczema.
We want to focus more on our work supporting eczema research, to develop better treatments and ultimately a cure, and campaigning for better eczema care for all sufferers. These changes will enable us to become a stronger collective voice for the eczema community. Too many people are struggling to achieve a good quality of life because of their eczema and we need better care urgently.
We recommend you speak to your doctor of other healthcare professional for advice about managing your eczema. If you have urgent healthcare needs, then contact NHS 111 or call an ambulance.
Organisations including the Samaritans and Mind, offer support with the emotional impacts of living with eczema – do contact these organisations directly if needed.
We will keep the situation under review and should the charity’s funding position become stronger in the future, then we will reassess the viability of having a helpline service.
If you have any questions about this, please email Andrew Proctor at info@eczema.org
We know a lot of people with eczema worry about possible side effects of using steroid creams and ointments (called ‘topical steroids’) to treat eczema flare-ups. This includes concerns about the risks of topical steroid withdrawal (TSW), which feature widely on social media.
TSW is complex and we have so much still to learn. It’s hugely frustrating there is relatively little research into the causes, symptoms and treatments. These symptoms can be extremely painful and distressing. We have more information on topical steroid withdrawal here.
One of the many challenges is that the symptoms people experience when stopping using topical steroids can appear similar to those of untreated or poorly-controlled eczema.
National Eczema Society worked with the British Association of Dermatologists in 2021 to produce a joint position statement on TSW, in response to widespread patient concerns. We believe it is important for healthcare professional organisations and patient groups to work together to find better ways of diagnosing and supporting people with TSW.
Topical steroid withdrawal – updated joint statement
We’ve collaborated again with the British Association of Dermatologists, and also this time with the British Dermatological Nursing Group, to update the statement. The revised and expanded TSW joint statement has been published today (22 February 2024). This builds on the earlier document, setting out what we know about TSW from the latest medical information available. We have summarised the research and clinical evidence and clarified the terms used. Lots of healthcare professionals contributed to the revised joint statement, including members of the Society’s Medical Advisory Board, as well as people with eczema.
Many children and adults in the eczema community rely on topical steroids to treat eczema flare-ups. It’s very important patients and carers know how to use topical steroids safely and effectively. If you are concerned about overusing topical steroids, or of stopping using these medicines, then we advise you speak to your doctor or other healthcare professional. It is also super important for healthcare professionals to take the time to explain to their patients how to use topical steroids safely and effectively.
The UK medicines regulator, the MHRA has produced guidance on topical steroid safety National Eczema Society was pleased to contribute to the review. As you can see from the webpage, there is advice on TSW for both patients and prescribers.
National Eczema Society is calling on the MHRA to introduce clearer strength labelling of topical steroids to support the safe and effective use of these medicines. This change needs to happen and is supported by patients and healthcare professional bodies.
You’re invited to a talk organised by the West Surrey and North East Hants Support Group of National Eczema Society at 2pm on Saturday 24 February 2024.
Our speaker, Dr Alpa Kanji, will be explaining how habit reversal therapy combined with topical treatments can help people with eczema break the habitual itch-scratch cycle. Dr Kanji is a dermatologist working at St John’s Institute of Dermatology in London and she teaches habit reversal therapy.
The event is being held at The Pavilion Woodbridge Road, (next to the cricket ground) in Guildford GU1 4RP. Entry is free but donations are very welcome. National Eczema Society literature will be available.
The talk is also being filmed and can be viewed online live and later on National Eczema Society’s Facebook page www.facebook.com/eczemasociety. You don’t need a Facebook account to watch the livestream.
Dr Alpa Kanji MA PhD (Cantab) MRCP CCT (Derm) is a scientist by background, having researched bacterial genetics for which she was awarded a PhD at the University of Cambridge. She completed her medical and dermatology training in London and is currently undertaking a fellowship in paediatric dermatology at St John’s Institute of Dermatology. Dr Kanji is particularly interested in atopic eczema, including the mind and skin connection, and is passionate about empowering patients to manage their skin condition as well as possible. She teaches habit reversal therapy, which encourages patients to change longstanding habits of scratching and picking their skin.
We face so many challenges living with eczema. For almost 50 years, National Eczema Society has been working tirelessly to support and champion the needs of people with eczema and their families. We still have have more work to do and we need your support!
Please donate to our Talk Eczema Christmas appeal if you can.
Eczema is complex condition, involving our genetics, immune system, environment and skin barrier. It affects each of us in different ways and there are no simple answers to managing eczema well. This also makes it hard to explain to others what it’s like to live with eczema.
We find ways of coping and getting on with life. We have no choice. The challenges of managing inflamed, painful, cracked skin and the relentless itch are ‘normal’ for too many people. We mostly face these challenges alone, or in silence, but we need to Talk Eczema to help others understand and get better medical care. National Eczema Society wants to give people with eczema a louder voice, by running campaigns and encouraging people to Talk Eczema.
Our charity relies on donations from wonderful supporters like you. Your gift, no matter how big or small, helps to create a better future for people with eczema and their families. It’s quick and easy to donate through our website here. Thank you!
Very best wishes of the season from everyone at National Eczema Society and a happy New Year!